Living with an invisible disease is strange. It's like you have one foot in everyone else's world and one in your own. When you look just fine on the outside, it's hard to explain why you need to sit down because your body is so weak and exhausted. When everyone is scoping out their menu at a restaurant, you are scoping out the nearest bathroom and stressing on what you can eat with out looking, well, odd for not ordering anything. I have Crohn's disease. My body literally fights itself within my intestinal lining and the symptoms are just not fun enough to talk about. And sometimes the hardest part is the fact that there is no cure. I take very expensive medicine...I mean EXPENSIVE, even with insurance, just to try and make the time between flare-ups as long as possible. So when people hear I have a flare-up, they often say "Aren't you taking your medicine?" Well, yes, but like I said, there is no cure, just pills that hopefully keep me healthy for longer periods of time.  When I am sick, I always tell myself "this too shall pass." But the scary thing is when I am healthy, I know that "this too shall pass" as well. Either way, sometimes I feel like I just can't win.

Visit www.ccfa.org for more information about Crohn's and colitis.

 


Kim
04/18/2011 3:30pm

Ironically, I could copy everything you just said and it would also be true for me as well. At a low point in my journey I was complaining to Mom-mom, who's response was " Don't say that! You know it is a gift!" Her words come to mind often and bring me peace:) Then I start contemplating the gifts I have received in relationship to the illness. It has made me value my relationships more and stay in the moment. I hope this brings you peace too.....from the mouth of our amazing grandmother:)

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Cristy
04/18/2011 3:35pm

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Holly Lost and Found
04/18/2011 4:33pm

So, funny Kim, this quote just popped up on my FaceBook "With everything that has happened to you, you can either feel sorry for yourself or treat what has happened as a gift. Everything is either an opportunity to grow or an obstacle to keep you from growing. You get to choose." - Dr. Wayne Dyer

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Pam
04/18/2011 5:24pm

Having a disease like Crohn's has to be difficult. I have known you for almost ten years and you are always upbeat and positive. Sometimes it's okay to have a pity party cause it is crappy that you have to have this disease. Eat some ice cream, have a Starbucks then put a smile back on that beautiful face. God loves you and made you just the way you are.

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05/30/2011 8:43am

Invisible diseases are no less painful or weakening than those that can be seen. Attitudes of others can cause even more distress when they do not try to understand.

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